Friday, February 13, 2015

One day at a time - Feb 13th

We have cancelled our honeymoon/babymoon to Europe and Hong Kong because it is unsafe for me to fly to these locations, given Bubbles' condition. We couldn't cancel the flight to NYC, so we went anyway as it was a short flight. It gave us time to take our minds off and relax.


During this time, DY and I decided that it is important for us to understand the cause of Bubbles' condition - we want to know the diagnosis. Knowing the diagnosis would give us more information in terms of how lethal the condition may be, what possible conditions Bubbles may develop as the pregnancy progresses.

We decided to have an amniocentesis done. It is a sterile procedure where the OB inserts a thin long needle through my abdomen and into the amniotic fluid surrounding Bubbles. She will then use syringe to extract around 40mL of amniotic fluid as it contains Bubbles' DNA. It looks something like this... and no analgesia (pain medicine):
The lab can then analyse the chromosomes, and specific genes that could contribute to Bubbles' situation. If Bubbles' condition is passed on by me and DY, our future babies would have 25% of encountering the same.

Our genetic counsellor called me two days ago and she was able to fit us in the next day (yesterday). We agreed to do it soon because should anything happen to Bubbles, then we won't be able to obtain this information. But I was so stressed out the day the procedure because of my anticipation of the pain from the procedure, because of my fear of finding out the truth about Bubbles, because of the small added risk of miscarriage.

Thank God for everyone who dropped whatever they had to do to pray for us, to come over to pray with us, cry with us, and encourage us through messages in such a short notice.
Be strong and courageous. Do not fear or be in dread of them. For it is the Lord who goes before you. He will be with you, he will not leave you or forsake you. Do not fear or be dismayed. - Deuteronomy 31:6, 8
Yesterday morning, we had all the paperwork done and proceeded with the amnio. The doctor distracted me and worked quickly. Bubbles was out of the way and made it easy to obtain the fluid. It pinched when she inserted the needle, but the pressure and the cramps in my uterus worsened as she extracted the fluid. After the procedure, the doctor showed us Bubbles' heartbeat again, and said that before she began the procedure, she was actually quite worried that Bubbles wouldn't have a heartbeat by now, given the findings on the previous ultrasounds.

Bubbles, you are a fighter, and I thank God that I can see you again through the ultrasound.

I could barely walk afterwards and they let me rest in a lazy boy chair. I was really wiped out and really sore throughout my entire abdomen for the rest of the day. Short distances like walking to the bathroom would trigger some cramps. Headaches and nausea also bothered me the entire evening. I did nothing but lie on the couch all day. DY cooked dinner for us :)


Our next steps include another anatomy ultrasound by the end of February, followed by a fetal echocardiogram early March, if Bubbles continues to fight.

We got results today and Bubbles doesn't have any Downs, Turners, Trisomy 13/18, which we anticipated because we knew that Bubbles is presenting with skeletal disorders. We are still waiting for other results which will take 4-6 weeks to process.  We also found out Bubbles' sex, (I was right!!) but we are not telling you that yet :P

We are learning to take it one day at a time. We don't know what news await us, but we have hope, knowing God is carrying us and sending angels to support us. We are not alone, we are never alone.

Song to share for today:

角聲使團 - 患難背後
沉痛中,無聲問上帝,
為何我的人生已跌於谷底,
靈魂被空虛包圍,長路中找不到安慰,
窮途上走迷,無家可歸。 
絕處中,仍能發現祂的同在,寸步未離開,祂的愛,可遮蓋心中痛哀,自這天,讓我沉醉於祂溫暖熱愛,歲月縱冰冷,濃情尚在心坎滿載。 
遙看蒼天,苦難密佈,
為何半點陽光已經找不到,
承受著惡夢煎,熬,疑惑中沒法高聲禱告,
留連在荊途,常失足跌倒。 
願我知,無常變幻裡,祂仍常在這浩瀚人海,我深信,祂的愛總不變改,在每天,讓我憑信心抓緊這大愛,我便看得見,原來患難背後有愛。

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