Share about your beautiful children today. Who are they? When were they born? How long did you have them for? What is their name? Share as much or as little as you feel comfortable with.
My beautiful baby girl was born on May 28, 2015.
We nicknamed her Bubbles when her first ultrasound revealed something called cystic hygroma, which looked like clusters of grapes, from the back of her head down to her bum. We later learned that she had a rare form of lethal skeletal dysplasia.
We waited 31 weeks to meet her. She fought to stay with us for an additional 19 weeks that her condition would not have permitted. I got know that her favourite things were cherries, daddy's belly rubs, daddy's unrefined tunes on the harmonica (haha), and worship songs (Chris Tomlin's Army of Angels and Jesus loves me, and Crowder's Come as you are). She then chose to enter this world asleep, so, so peacefully. I couldn't believe that I could actually meet our little warrior face to face, hold her, stroke her thick tuff of jet black hair, caress her little hands and feet, see which of her features came from me or Daryl... much more than what we could hope for.
We held and kissed her still, small, delicate body for short periods of time for 48 hours before we said our final goodbyes, took our last family photo together, then wistfully let go of her into the hands of a nurse.
Of course anyone of sound mind would wish for a healthy baby, but if I were given the chance to do over, I honestly wouldn't have changed anything about her. Some people expressed that she was blessed to be loved by me and Daryl, but I truly, honestly, felt that I didn't deserve her, and that I was the blessed one because she gave me so much more than what I could give to her.
We ended up naming her "Charis" (pronounced as "care"-"riss"), a Greek Biblical word meaning grace, gift from God. She was truly a special gift. Not everyone would understand how she could be, but God knows, we know.
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